Thursday, August 20, 2015

A Quick Update

Thank you all so much for the outpouring of love and support in light of our newest development with the babies. We did get to speak with Dr. Pardalos last night (the neonatologist from the NICU) and he was so kind and caring, but essentially had the same thing to say as Dr. Jackson - there is no medical right or wrong decision right now. The good news is that he does feel confident that at Lena's size, he could intubate her, which would at least give her a fighting chance. Sadly, the reality is that none of our babies are even 2 lbs yet, and we would be risking lives if we delivered them and we would be risking lives if we left them in utero. And depending on what we find on our scan tomorrow, particularly with Oliver's blood flow, we could have to make that decision within a couple of hours. The medical teams are gathering and preparing just in case we do choose to deliver, but none of them can tell us what the best choice is. And I don't blame them. They are in the same position we are...there are no guarantees at this point in gestation and every decision we make right now is a gamble, and no one wants to be the one to make that call. So ultimately it's up to Nick and I, and we are praying so hard that God would give us wisdom beyond what we deserve and peace that passes understanding. No parent ever wants to be in this position. Both doctors and every nurse we've talked to has teared up a bit with us as we've talked about all the risks and benefits associated with these choices, and it is so overwhelming to know that they love these babies so much already that they are treating them like their own.

I've kind of checked out of communication right now, but please know how very blessed we are by all the "shares," "likes," comments, messages, texts of encouragement, and words of comfort. I'm trying to keep up, but medical staff have been in and out of our room since 3:00pm yesterday, and we're just feeling exhausted and overwhelmed and trying to create space to pray and grieve and come to peace with a decision that we aren't even sure we're going to have to make tomorrow. That's maybe one of the most awful parts is that we have to be ready to make it at any point from here on out and we just don't know when. If not tomorrow, Saturday? And if not Saturday, Tuesday? And if not Tuesday, next week? So we keep praying and hoping and asking God for a miracle, but also believing that he loves these babies so much more than we ever could and that no matter what happens, He is in control. He has not lost sight of these babies or this situation and none of this is a surprise to Him. For that we are so, SO grateful.

One of the comments that did catch my eye on Facebook last night was from a sweet friend of mine that I worked with at summer camp in college. She was praying that we would be able to make this decision without fear of judgement or opinion or guilt or regret no matter the outcome, and for that I am so thankful. Thank you, sweet friend, for praying that for us and reminding us and everyone else on our journey that this is not a position anyone ever wants to be in. And thank you, friends and family and kind strangers who have jumped in to this story with us for being so compassionate and just reminding us that we are loved and prayed for. We really can't thank you all enough for that. I was hesitant to even put this on the internet, because I know it seems like an invitation to join us in making this decision, but I'm so, SO thankful that we haven't felt any sort of judgement or condemnation from anyone about what they would do, or what we should do, or what God would do, etc. Instead, you all have been an incredible source of love and encouragement, and we are so grateful. We've been honest with you all up to now about what's going on, and we've seen miracles - especially with my health and Lena's health - and I continue to share with you all because I know it is your prayers that are holding us up right now and I'm confident you will continue to do so. We are praying for a miracle for Oliver now too, but we are also praying for peace and comfort should hard decisions need to be made in the near future. Thank you for continuing to pray for us and love us and believe in us. We serve an incredible Savior and we are clinging to him for peace, wisdom, guidance, and comfort now more than ever.

14 comments:

  1. Thank you for the update!!! Praying right now for all of you! God will give you a peace that passes all understanding! !!!

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  2. Whatever decisions you make, whenever you have to make them--they will be thebest ones. Your hearts will tell you what to do. Pray and love the babies, each other and your families. So many people are praying for your strength and health and for all four of these miracle babies! We will keep adding our hopes to yours. Keep trusting God to care for all of you.

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  3. Dear Heavenly Father, I lift this wonderful family up to you. God, they need Your intervention and protection for mom and babies. Father, please wrap Your loving and tender arms around each of them giving Your peace and direction. Please let the babies grow as only You can help them grow. Please give the doctors your clear path as to what needs to happen when. This I pray in Jesus' Name. Amen

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  4. Hello I saw your blog shared on a Facebook group I belong to and I wanted to reach out to you. My husband and I have 6 year old quads in KC Mo. Please feel free to contact me about anything.

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  5. God of wisdom, our strength, pour out your comfort and speak your words to Nick and Emily. lord fill them w your peace that passes all comprehension....

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  6. I am praying for you tonight, the middle of the night, praying sleep will find you, that you will experience some sweet comfort, and that your connection with your husband will be strong tomorrow. I attend Graceful Wakt and Crossing, that's how I came to follow your blog. I see the same doctors and staff at CMFC and love them too.

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  7. I am praying for you and your babies. Every choice you have made along this path has been FOR life and FOR Christ's glory.Our Heavenly Father is with you, He loves you and your babies. You cannot disappoint Him or fail Him, since HE is upholding YOU with His righteous right hand. He will NOT let you go. You are loved, your babies are loved more deeply than you can understand. Be at peace in Christ, for no matter what decisions you have to make, Jesus is choosing with you.

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  8. I'm praying for you. My heart is with you.

    Pappa, you know the decisions they face, and you love these little babies. Please give mom and dad insight, wisdom, and peace. May their hearts be comforted as they walk this journey. Amen

    I see God holding you all in his hands, even in the midst of difficulty.

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  9. I couldn't even imagine giving advice in this situation. There is not right or wrong. The lives of your 4 precious babies are in God's hands and when the time comes to make a decision, your months of prayer and trust and faithfulness will guide you in what you choose to decide. Do not let that decision or any outcomes riddle you with guilt. Guilt is not from our father. He brings peace and understanding, not uncertainty and confusion. "For I know the plans I have for you..." Jeremiah 29:11. We are keeping you in our prayers. Keep showing those 4 precious babies all the love you have been. They feel it. They know your doing everything you can for them. Stay strong Mama!

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  10. We love you Emily Beydler. Sending our hugs and prayers.

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  11. My neighbor and I prayed for you yesterday as we were on a 5 mile walk. We were on country roads, surrounded by God's beauty of nature. We were assured that God is in control from the biggest storms to the tiniest baby that He creates. You are His vessel, holding His creation, His children. We continue to pray for His peace for you and Nick. You have been chosen by Him. For these children you have prayed. We join you in prayer.

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  12. Eager to hear more from you and to hold you in love as decisions are made. I will be up tomorrow, and look so forward to seeing you. Blessings to all. Teresa V.

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  13. You are a warrior, no matter how weak you feel. Not many people could have handled these blessings/difficulties/panics with so much grace.

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